I would like to believe that I am a very adaptable person. Yes, I react to whatever change happening around me but I never react too much. Often, I just say, “Huh.” It makes more sense to choose battles and fight only those with full gear on and an appropriate war cry or song. 

I was recently diagnosed with a chronic disease. That is the reason for my weight loss and all the consequential jeans-adjustment. I am not dying but it will never go away. The doctor just gave me medicines with side effects worse than the symptoms of the disease itself. I could go on and on about how unfair this is but I cry easily and I already had my weekly dose of bawling yesterday. I’ve been trying to come to terms with the result of how my body betrayed me (or is it the other way around?) for almost a month now. There are days when I feel like throwing caution to the wind and just let my insides rot as long as I have FUN while it’s happening. This urge is especially strong when just about everyone I see comments on how thin I’ve become. You may be commenting about how I am now fashionably thin but in my head, all I hear is “sickly thin.” But ten minutes of pleasure is not worth two days or, possibly, a lifetime of pain. 

After 24 days of having this life sentence hanging over my head, I finally decide to take control of it. I have done enough research to know that I can have a life free of suffering, and eventually, gain weight. The road is tricky and I am still in this dark hole, with no indication if my method is working. But I know for sure that things will get better. Things always will.

The last two sentences of the previous paragraph have helped me live through difficult times. Call it my mantra, if you will. Together with this mantra, I have this list of things that somehow make life peachy. Some are things I’m looking forward to, which, in turn, make life worth living.

1. Sewing and learning new things to sew, such as this diaper bag that called for a gazillion pockets and something that will make it stand on its own. It turned out alright, methinks.

DSC_6717.jpg picture by miwiyam

 DSC_6720.jpg picture by miwiyam

 

2. Interview with Cebu Daily News about my little crafty business. I don’t know when this is coming out. Watch out for it.

3) Osamu Tristan, my rock, my Totoro and this Totoro sculpture he made for me for my birthday.

totoro.jpg picture by miwiyam

4) Books. Lately, I’ve been trying to rekindle that peace I always feel when lost in a book. I have gotten too busy to read this last couple of years. That will stop now. I’m reading Rant by Palahniuk and Slaughterhouse Five by Vonnegut. I think I will finish Slaughterhouse Five first since Rant is just a tad medical and morbid and reminds me of my condition. BUT I DON’T HAVE RABIES, OKAY?

5) Cooking. It’s a great stress-reliever. Now if only I can find someone who can wash after me.

 

I really wish I can take some time off my day job so that I can fight this fight in earnest. But that’s not going to happen. So what I’m going to do now is limit my sewing to non-pressure types. This means that I will not be taking orders for August and September. I already promised to make a dozen guitar bags for two clients in August and that’s enough to keep me busy but sane. I might even turn this blog into a photoblog or artblog for a while. I’ll post stuff that helps me relax. I’ll post more lists of things that I am thankful for.

If you can send positive vibes my way, I will really appreciate it. Thank you.

13 Responses to “gratitude post (not original but i might make this regular)”

  1. Marta said

    Hi!
    This is my first comment in your blog, but I think this post needs one.
    I wish you all the best, all the strength and courage to fight, and the energy to win.
    Take care and good luck.

    Marta

  2. Hey,

    my sister had a cronic disease for years now. I always admired her for her strength in dealing wih it. You sound just as strong.

    I wish you all the best and that you may find your path.

    Paula.

  3. Eva said

    Dear Myam,
    I’m sorry to hear about your condition but admire you enormously for the way you talk about it…you sound so strong and determined, I’m sure you’ll manage it “away” -as far as that’s possible- and enjoy life to the fullest. I look forward to seeing the new projects and style blog. all the best!

  4. konsuy said

    hi myam
    i’m sure you will be able to manage all the stress that will come your way. rest, take lots of it. be strong and stronger. there are lots of us praying and loving you.
    ayo ayo diha
    chichi

  5. oge said

    Hi Myam

    This is to send loads of love your way wrapped in a beautiful pink bubble with sprinklings of green for healing.

    I’ve not posted here before but felt compelled to after reading this post

    oge

  6. ninox said

    Myam, I hope that you know if you ever need a ear to talk to my email is often looked at and I am happy to send you a kind smile when required.. Be strong and be sure to take time out when you need it..

    *huge hug*

  7. n. said

    hi, first time visitor, but i felt i had to say something.
    i believe that each of us receives a cross as heavy as we can carry. i’m not a church person, i mostly believe in something greater than us, karma, good deeds atracts good things etc. life isn’t fair, and good people seem to die young and suffer the most. i’m also a pessimist.
    anyway, all this is to say i’m sorry for whatever it is you have, and i wish you all the luck.
    but don’t think that whatever it is will overpower you. you are bigger than the cross. YOU are carrying it, not the other way around.
    it’s funny, i never comment on blogs. don’t know why i did it today.
    take care
    n

  8. Nancy said

    Life can be so very difficult at times.
    I admire your courage. Best wishes.

  9. Victoria-New York said

    keep up that fighting spirit. now is the time to do the things you want to do and enjoy life like there is no
    tomorrow. stop and smell the roses. take time off and
    breath. wish you well and will be thinking of you. God Bless

  10. alphae said

    ate meam.. im so sorry..
    that’s why diay when we saw each other sa
    Sm I noticed something changed in you..
    that’s why diay..
    take good care ate!
    be strong and God Bless!

    ~alphae~

  11. ka3na said

    hey myam,

    just wanna let you know that i linked your website on my blogspot. i admire your courage and your optimism. salute! it would be wonderful to read more of your blogs and tips soon.. always looking forward to it.

  12. ianne said

    I am very sorry to hear about your condition. I’ll pray for your quick recovery. Think positive of it all. Take care of yourself & God bless.

  13. Paulyn said

    just keep doing the things you love, stay strong!

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